In The Still Of The Night
The call from P. at 2:13 am. Some thing's more wrong than usual wrong.
No! Don't wear that tee-shirt. You like it. You will always remember you wore it this night. Wear the one you hate.
The cab driver didn't realize Columbia stops going two-ways at Delancy. He tries to speed on the East River Drive service road but hits all the red lights on Grand Street.
Does running fast through an empty courtyard, past the fountain, on the same stones I ran as a child, does running fast slow down bad things?
Two years of "normal" going from a woman who could walk to the bathroom on her own to this fragile sparrow of ancient skin struggling to breathe her eye already traveling to other places.
I ask her can I take you to the doctor the sound "no" not from parched lips unable to close for fear of suffocation but from gut clinging to home.
She sips water after I sing her sutras.
Too much distress. I know the wishes made ten years ago. What decision can I live with what decision can I not? P. listens, tilts her head, raises eyebrows, nods, listens.... I pull out old papers words scratched out other neatly typed what decision can I live with what decision can I not?
It is near 3am. Doctor Russia calls back immediately. If it is another flare-up then the hospital can treat it. If it is the end we can get her home. I can refuse intubation. It's win-win I say to P. I'm going to call 911.
I ask again you are in so much distress I want to take you to the doctor I promise I'll bring you home. I promise you I'll bring you back home and the word yes is her trust in me that she raised me not to lie.
He is tall huge like a redwood. She is officious. They both stomp around with many big FDNY emergency bags. Two more show up. Such heavy boots. I know the neighbors below must know something big is happening. She orders everyone around.
Suddenly my mother is no longer mine. She is theirs and I cannot stop them or the massive amount of medical equipments flying out of boxes and bags or the law that said the form we didn't get filled out means they have to do everything. When I hear Florence cry out I snap "no more" or "stop that" or something and one of them steps in front of me to keep me from her side.
The stretcher doesn't fit in the elevator so they tip her up. If they went a bit higher she'd be on her own two feet.
They try to put me in the second ambulance. "No! I'm riding with my mother." They make me ride shotgun, not in the back holding her hand.
She says "Stop taking pictures please." "I'm not taking any of you, just my mother." "It's breaking HIPAA patient confidentiality." "She's my mother. I'm her HIPAA person." "Ma'am, it's breaking confidentiality." I mutter under my breath, "I'll take a picture of my mother if I want to." But I'm too tired, too tired, too tired. "I'll take a picture of the coffee cups instead." The driver grins. My camera malfunctions.
The fundamental things apply
As time goes byIn March, when Florence and I spent 10 hours in the ER (The ER Visit-Part Two: The Walls of Jericho) there was a doctor there some addict was screaming at. I remembered him. Tonight he became Florence's ER doctor. "Do you understand what that means if we do that?"
"Yes."
"Ok honey, ok sweetheart, I'm sorry, we're almost done, it's a bit uncomfortable, we're almost done..."
"Your mother was biting the tubes.
"Biting?"
"Yes. She didn't want them."
"I'm glad she was biting them."
"Let's make her as comfortable as possible now."
"I want her home."
"This is Dr. Palliative Care."
"What seems to be happening is..."
"Should I call my sister or can we wait..."
"Call your sister, now. Tell her to get here as soon as she can."
"The lab result just came back. It looks like she had had a heart attack and that's why..."
"Claire, I'm on the train platform. I couldn't find any cash for a car service."
"Florence, Louise is on the train platform. You have to hang in there until she gets here. You have to. I know you can do it. Hang in there."
"You're looking at the machine to tell you how she is doing. I'm going to turn off the machines so that you can just be with her."
"I can't remember the Cole Porter song, You're the Top. I didn't bring her cassette player to play her old songs..."
"Do you know when your sister might get here?"
"Florence will wait. She's going to wait until Louise gets here."
"Here. I just downloaded Pandora on my I-Phone. It's not all Cole Porter but similar. Here, put it by her ear..."
"Florence! Louise is here!"
"Hi Florence."
thank you thank you I love you thank you so much for giving me I'm so grateful for I love you music is the most important thing in my life I got so much from thank you for my passion I'm so sorry so grateful for this I love you thank you so much I love you I'm so sorry I love you thank you
Then softer than, a piper man - one day it called to you
And I lost you, to the summer windNear 6:25am, on the first day of Rosh Hoshanna, while Louise and I were taking turns holding her hand, the two of us talking to each other in that allegro molto staccato of words that we've always done, Fred Astaire, Ela and Sinatra playing into her ear from of the I-Phone of Dr. ER, in some brief second of some brief exhale, Florence (Frances) Deutsch Moed died.
My sister and I offer profound gratitude to Pearline Edwards, Ghislaine Carrington, Dr. Portnoi, Nurse Peters, Dr. Pool, Dr. DeSandre and the incredible staff of Beth Israel on both the 5th Floor and in the ER, the many FDNY EMT we rode with, and our incredible friends and her students and neighbors and beloved family who loved, supported, and travel this road with Florence and with us these past two years.
A memorial service is tentatively being planned for November 23 in the morning at Henry Street Settlement.