IN THE STILL OF THE NIGHT
I scramble for clothes….no, not that tee-shirt! I like that one. I’ll always remember I wore it this night.
I throw on a shirt I hate.
The cab driver doesn’t realize Columbia stops going two-ways at Delancey. He tries to speed on the East River Drive service road but hits all the red lights on Grand.
Does running fast through an empty courtyard in the middle of the night - past the fountain I sat by, down the same stone walkway I played on as a child - does running fast slow down bad things?
Two years of opening Florence’s front door to a constantly changing, always different "normal" - from a woman who could walk to the supermarket on her own - to this moment, a fragile sparrow held together by ancient skin struggling to breathe, her only seeing eye already traveling to other places.
When I ask her “can I take you to the doctor” the sound "no" shoot out, not from parched lips unable to close for fear of suffocation, but from a gut clinging to home.
So I sing the sutras. She sips some water.
There is still too much distress, I tell Penny. Penny is silent. She knows she can’t say anything. It’s not her job, it never was.
I pull out the the wishes made ten years ago. What decision can I live with, what decision can I not, old papers, words scratched out, other neatly typed….I read them again….what decision can I live with, what decision can I not?
Penny listens, tilts her head, raises her eyebrows, nods, listens, tilts her head, raises her eyebrows, nods...
It is near 3am. Doctor Russia calls back immediately. He assures me if it is another flare-up then the hospital can treat it. He assures me if it is the end I can get her home. He assures me I can refuse intubations. He assures me.
It's win-win I say to Penny. I’m calling 911.
I turn back and murmur to Florence “you are in so much distress I want to take you to the doctor I promise you I'll bring you home I promise you I'll bring you back home I promise you I promise…
“O.K.” whispered back - her trust in me, her trust she raised me not to lie.
EMT appear suddenly. HE is tall huge like a redwood. SHE is officious. They both stomp around with many big FDNY emergency bags. Two more show up. Such heavy boots. The neighbors below must know something is happening. SHE orders everyone around.
Suddenly Florence, my mother, my mother is suddenly no longer mine. She is THEIRS and I cannot stop THEM or the massive amount of medical equipments flying out of boxes and bags or the law that says the form we didn't fill out means THEY get to do everything.
When I hear my mother cry out I snap "no more" or "stop that" or something that attempts to get back my mother back to me. One of THEM steps in front of me and keeps me from stopping THEM.
The stretcher doesn't fit in the elevator so THEY tip her up. If THEY went a bit higher she'd be on her own two feet for the first time in months.
SHE tries to put me in the second ambulance.
"No! I'm riding with my mother."
HE points to the front seat - I can only ride shotgun, not in the back holding my mother’s hand.
SHE says, "Stop taking pictures please."
"I'm not taking any of you, just my mother."
SHE says, ”It's breaking HIPAA patient confidentiality."
"She's my mother. I am her HIPAA person."
SHE says, “Ma'am, it's breaking confidentiality."
I mutter under my breath, "I'll take a picture of my mother if I want to." But I'm too tired, too tired, too tired. "I'll take a picture of the coffee cups instead."
HE grins. My camera malfunctions.
I hear a siren from a distance and then realize it is ours.
THE FUNDAMENTAL THINGS APPLY
AS TIME GOES BY
AS TIME GOES BY
"Do you understand what that means if we do that?"
"Ok honey, ok sweetheart, I'm sorry, we're almost done, it's a bit uncomfortable, we're almost done..."
"Your mother was biting the tubes.”
"Yes. She didn't want them."
"I'm glad she was biting them."
"Let's make her as comfortable as possible now."
"I want her home."
"This is Dr. Palliative Care."
"What seems to be happening is..."
"Should I call my sister or can we wait..."
"Call your sister, now. Tell her to get here as soon as she can."
"The lab result just came back. It looks like she had had a heart attack and that's why..."
"I'm on the train platform. I couldn't find any cash for a car service."
"Mom, she’s is on the train platform. You have to hang in there until she gets here. You have to. I know you can do it. Hang in there."
"You're looking at the machine to tell you how your mother is doing. I'm going to turn off the machines so that you can just be with her."
"I can't remember the Cole Porter song, You're the Top. I didn't bring her cassette player to play her old songs..."
"Do you know when your sister might get here?"
"My mother will wait. She's going to wait until my sister gets here."
"Here. I just downloaded Pandora on my I-Phone. It's not all Cole Porter but similar. Here, put it by her ear..."
"Mom! She’s is here!"
thank you thank you I love you thank you so much for giving me I'm so grateful for I love you music is the most important thing in my life I got so much from thank you for my passion I'm so sorry so grateful for this I love you thank you so much I love you I'm so sorry I love you thank you
THEN SOFTER THAN A PIPER MAN
ONE DAY IT CALLED TO YOU
AND I LOST YOU
TO THE SUMMER WIND
Near 6:25am, on the first day of Rosh Hoshanna, while my sister and I were taking turns holding her hand, the two of us talking to each other in that allegro molto staccato of words that we've always done, Fred Astaire, Ela and Sinatra playing into her ear from of the I-Phone of Dr. ER, in some brief second of some brief exhale, Florence (Frances) Deutsch Moed died.
My sister and I offer profound gratitude to Pearline Edwards, Ghislaine Carrington, Dr. Portnoi, Nurse Peters, Dr. Pool, Dr. DeSandre and the incredible staff of Beth Israel on both the 5th Floor and in the ER, the many FDNY EMT we rode with, and our incredible friends and her students and neighbors and beloved family who loved, supported, and travel this road with Florence and with us these past two years.